July 23, 2011
Stop Volunteering and a Medical Relapse
I haven't been writing much on my personal blog -- way too many other commitments right now. I've been working my ass off and losing direction quickly. Gee, is that possible? Yes, apparently it is.
Organizing a blog tour is easier than it used to be -- I'm hiring someone to do one for me. Yay! I haven't built up contacts with many book bloggers yet and I don't have time to cultivate more this late in the game when the second book has just come out three weeks ago. So, lay out some cash for a super-duper organized person who knows what they're doing and BAM, I'm done.
Will it work and will I gain sales? No idea, but I'm willing to try.
Next -- volunteering. I don't know what the eff is wrong with me sometimes. I read a book in my genre, or a book from a Facebook contact and I think "Oh, I can help them with this" and I rush off and write an email offering my time. I guess a part of me sees so much potential in other books I want to help the writers gain sales and build an audience. I've often felt the writing community is close and helpful, so I never hesitate to jump in and offer assistance when I can.
But recently it's backfired on me. One person accepted my time and effort on reformatting an entire print book when they felt they couldn't say no. Not because they were physically afraid I'd pull a Jersey-girl and come at them with my massive limb-ripping-off talents, but because they are always eager to please. Twelve hours later and it comes to light that they were happy with the product the way it is and I never should have offered to help.
Let me point out, this person is a sweet and caring individual and just because I wasted my time doesn't mean I'm angry with them - I'm angry at myself for volunteering when I shouldn't have.
Another time, I edited a short section of an author's work (with their permission) to illustrate it needs another editing pass. I spent hours on it, and wound up upsetting the person when I couldn't edit the entire manuscript. I never implied I would edit the whole thing, but I felt like I let the person down with my refusal.
One enterprising friend pointed out I should charge for my time -- but I thank that is a double-edged blade. If I charge, then I feel the person has a right to expect my time and my "A" game - a game I'm sorely off of right now.
My emotional reaction to these recent volunteer efforts proved that to me. I was insanely angry over the time I wasted on the formatting project. Time I put off from getting my own print book launched and the work due for the RHP writers who trust me to get things done. "Insanely angry" -- Does that sound like me?
Arm-ripping jokes aside, it showed me what I didn't want to face -- I was having a relapse of symptoms. Irrational anger and mood swings being one of the signs. All of a sudden, the joint pain, muscle problems, tiredness, memory problems, and reduced cognitive issues became more apparent. Couldn't ignore them anymore and think of them as temporary.
I've been experimenting with not taking my normal medications and supplements. When I started the anti-parasitic treatments this summer I allowed myself to slip with the others. After all, I'd felt fan-freakin-tastic for months now, surely I didn't need all those antibiotics, pro-biotics, liquids, powders and more supplements than I care to think about?
Umm… yes, apparently I still do need them. It's been a depressing week. I started with all the pills again last week, plus the fifth anti-parasitic medication on last Sunday, but had a major reaction when I went out Tuesday evening with friends and had three drinks over the course of the evening. I wasn't drunk by any means -- I think by age forty I should know that feeling quite well. I even stayed up 90 minutes past my last drink and had more water.
But the next day was hell and I couldn't take any meds at all, spending my morning in the bathroom vomiting bile. Also, by this past Monday (even after starting all the pills the previous Wednesday) my neuropathy came back in my hands and I started losing feeling in my fingers. I'm not that stupid -- it's no coincidence that I messed up on my supplements and antibiotics and a few weeks later my neurological signs came screaming back.
I really thought I had this thing beat. I'd felt better than I had in years and I sincerely hoped I could cut back on all the constant care this treatment required. It was a gamble, cutting back like I did, and one I didn't clear with my doctors first. I was so tired of all the pills and shit I just wanted a break.
Now, here I sit, my short-term memory shot and my moods erratic. Numb hands and weepy as I try to clear my head. I should be happy - I'm selling more books than I've ever sold in my life and starting to make some actual money. But I've spun so out of control with my health in such a short time I feel like I'm scrambling on a daily basis to appear normal.
I know what I need to do, it's what I've done for the past two years since these extensive treatments started. Step back, re-group, make a plan, and stick to it. I owe it to my children, my husband, and myself.
My writer friends will still be my friends whether I edit, make covers, format or answer their emails in under an hour. Most of them have stuck by me the past year when I've had some similar relapses and have offered their time to help me in a heartbeat (Thank you!).
Sure, we know I'm a fighter. I just need to narrow my focus for a while to two things during my work day - 1) My health 2) My writing.
Because hey, let's face it, book three isn't going to write itself and I've got some readers who are actually clamoring for it. Who would've thunk it?
The series is reaching people who like it -- and sure, some who don't and review it when they don't like it -- but overall things are good. I can't complain on that end.
So, let me quite my whining and go choke down my twelve pills and seven liquids with my lunch. Life can always be worse and this is just another bump in the road to getting better.
Wishing you all a good end of July!
C.J.
Organizing a blog tour is easier than it used to be -- I'm hiring someone to do one for me. Yay! I haven't built up contacts with many book bloggers yet and I don't have time to cultivate more this late in the game when the second book has just come out three weeks ago. So, lay out some cash for a super-duper organized person who knows what they're doing and BAM, I'm done.
Will it work and will I gain sales? No idea, but I'm willing to try.
Next -- volunteering. I don't know what the eff is wrong with me sometimes. I read a book in my genre, or a book from a Facebook contact and I think "Oh, I can help them with this" and I rush off and write an email offering my time. I guess a part of me sees so much potential in other books I want to help the writers gain sales and build an audience. I've often felt the writing community is close and helpful, so I never hesitate to jump in and offer assistance when I can.
But recently it's backfired on me. One person accepted my time and effort on reformatting an entire print book when they felt they couldn't say no. Not because they were physically afraid I'd pull a Jersey-girl and come at them with my massive limb-ripping-off talents, but because they are always eager to please. Twelve hours later and it comes to light that they were happy with the product the way it is and I never should have offered to help.
Let me point out, this person is a sweet and caring individual and just because I wasted my time doesn't mean I'm angry with them - I'm angry at myself for volunteering when I shouldn't have.
Another time, I edited a short section of an author's work (with their permission) to illustrate it needs another editing pass. I spent hours on it, and wound up upsetting the person when I couldn't edit the entire manuscript. I never implied I would edit the whole thing, but I felt like I let the person down with my refusal.
One enterprising friend pointed out I should charge for my time -- but I thank that is a double-edged blade. If I charge, then I feel the person has a right to expect my time and my "A" game - a game I'm sorely off of right now.
My emotional reaction to these recent volunteer efforts proved that to me. I was insanely angry over the time I wasted on the formatting project. Time I put off from getting my own print book launched and the work due for the RHP writers who trust me to get things done. "Insanely angry" -- Does that sound like me?
Arm-ripping jokes aside, it showed me what I didn't want to face -- I was having a relapse of symptoms. Irrational anger and mood swings being one of the signs. All of a sudden, the joint pain, muscle problems, tiredness, memory problems, and reduced cognitive issues became more apparent. Couldn't ignore them anymore and think of them as temporary.
I've been experimenting with not taking my normal medications and supplements. When I started the anti-parasitic treatments this summer I allowed myself to slip with the others. After all, I'd felt fan-freakin-tastic for months now, surely I didn't need all those antibiotics, pro-biotics, liquids, powders and more supplements than I care to think about?
Umm… yes, apparently I still do need them. It's been a depressing week. I started with all the pills again last week, plus the fifth anti-parasitic medication on last Sunday, but had a major reaction when I went out Tuesday evening with friends and had three drinks over the course of the evening. I wasn't drunk by any means -- I think by age forty I should know that feeling quite well. I even stayed up 90 minutes past my last drink and had more water.
But the next day was hell and I couldn't take any meds at all, spending my morning in the bathroom vomiting bile. Also, by this past Monday (even after starting all the pills the previous Wednesday) my neuropathy came back in my hands and I started losing feeling in my fingers. I'm not that stupid -- it's no coincidence that I messed up on my supplements and antibiotics and a few weeks later my neurological signs came screaming back.
I really thought I had this thing beat. I'd felt better than I had in years and I sincerely hoped I could cut back on all the constant care this treatment required. It was a gamble, cutting back like I did, and one I didn't clear with my doctors first. I was so tired of all the pills and shit I just wanted a break.
Now, here I sit, my short-term memory shot and my moods erratic. Numb hands and weepy as I try to clear my head. I should be happy - I'm selling more books than I've ever sold in my life and starting to make some actual money. But I've spun so out of control with my health in such a short time I feel like I'm scrambling on a daily basis to appear normal.
I know what I need to do, it's what I've done for the past two years since these extensive treatments started. Step back, re-group, make a plan, and stick to it. I owe it to my children, my husband, and myself.
My writer friends will still be my friends whether I edit, make covers, format or answer their emails in under an hour. Most of them have stuck by me the past year when I've had some similar relapses and have offered their time to help me in a heartbeat (Thank you!).
Sure, we know I'm a fighter. I just need to narrow my focus for a while to two things during my work day - 1) My health 2) My writing.
Because hey, let's face it, book three isn't going to write itself and I've got some readers who are actually clamoring for it. Who would've thunk it?
The series is reaching people who like it -- and sure, some who don't and review it when they don't like it -- but overall things are good. I can't complain on that end.
So, let me quite my whining and go choke down my twelve pills and seven liquids with my lunch. Life can always be worse and this is just another bump in the road to getting better.
Wishing you all a good end of July!
C.J.
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About this blog:
"Who the heck is this C.J. chick?"
Sure, you may not have heard of me and that's okay. I may not have heard of you either ;-) But ask yourself this one simple question -- What were you doing in January 2009 and had you ever written one word of fiction?
I can tell you where I was and what I was doing. I spent days in doctor's offices and sitting at home the rest of the time, wondering what I was going to do with my time now that my property management and Realtor business was on hold for the foreseeable future.
That's right, I never wrote a fictional piece before and I never thought I could be a writer. My background is Art, Chemistry and Business… not English, Journalism, or Creative Writing.
Now, I'm an award-winning bestselling author of contemporary fantasy. In under three years. And I have 10,000 followers on facebook. Do you? 'Cause if you do then you probably don't need my help. ;-)
Side Note: I use an editor for all my books (several in fact), but not on my blog posts. So if you see errors, try to be nice and overlook them.
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7 comments:
Take care of yourself -- take a few personal days. You're forging an awesome writing career, but don't neglect your health.
I had 2 drinks 2 weeks ago, over the course of like, 4 hours, went to bed, woke up 2 hours later suffering from bouts of nausea and sweats. This nearing 40-thing and alcohol do not mix, not to mention if you're body is fighting an infection. Sux, but alcohol is not our friend right now.
On the other hand, with age does come alot more comfort in setting boundaries. Saying no can be your friend!
Take it easy and enjoy the rest of your July!
How did you get so wise, Nikki? I hadn't thought of it as being comfortable setting boundaries, but you hit it!
Thanks for commenting and for the encouragement - and I hope you have a great rest of July as well!
Hi, C.J. I'm sorry to hear of your current state, but pleased as heck that you are living the dream. Apparently, you know what to do, right? It sounds like it. Step back, regroup, make that plan and stick with it.
Feel better. *hugs*
-Jimmy
Thanks, Jimmy! Good to hear from you and thanks for commenting.
We all know the old quote "this too shall pass". Kind of sums it up. Just a setback.
Doesn't it feel like a constant juggling act and we're always adding and subtracting items whirling through the air? Don't know how some writers do it all.
C.J. I don't really talk about it much, but I was born with a genetic disorder. Your "twelve pills and seven liquids" made me think of my life before I got a proper diagnosis, when all the doctors could do was treat my box of horrible symptoms. Can you imagine going through the first 21 years of your life not knowing wtf is wrong with you, just that something is way, way off? Can you imagine your peers asking what's wrong and not being able to explain it to them because you don't even know yourself? When I was sixteen, all my friends got cars, I got a pair of hearing aids because apparently my inner ears had been damaged over time. Yup.
Now that the doc's have figured it out, turns out I only need ONE little shot every seven weeks to make me normal. Of course that ONE little shot is $95,000 PER DOSE and of course it doesn't help my hearing in the least, and it's not a cure, I'll be taking it for the rest of my life.
I guess my point is, I hear you on the medical pains. I'm sorry yours is more serious than mine. I mean, Muckel-Wells Syndrome certainly sucks to live with, especially without medication, but it's not as serious as Lymes. I'm not a religious person, but I have to believe that a higher power did this to make us stronger as a person.
Take care.
Wow, Jen! The cost is astronomical! I'm glad the shot works for you, but I can't fathom why it would be so expensive. Thanks for sharing, and yes I believe what doesn't kill us is intended to make us stronger people for living through it.
You and I will be Amazons by the end of our hopefully long lives ;-)
The cost is high because it's a brand new drug. It's only been out for a few years, in fact, they tested it one me before it was aproved for market. The other reason is that because MWS is so rare, there isn't a lot of use for the drug. Tylanol, for example, is cheep because there is a high demand for it.
Luckly, there is a support group for people who require it and I'm getting the drug 100% free through this group. All I have to do is fill out the paper work once a year and the government covers it - thank god.
They're curretnly testing it on people who have rhumitory arthritis.
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